# Research

**URL:** https://community.down-syndrome.org/c/research/6.md

[Latest](https://community.down-syndrome.org/latest.md) · [Categories](https://community.down-syndrome.org/categories.md) · [Tags](https://community.down-syndrome.org/tags.md)

---

## [Announcing the 2026 Research Forum](https://community.down-syndrome.org/t/announcing-the-2026-research-forum/195)

<div class="topic-metadata">

**Author:** [@frank.buckley](https://community.down-syndrome.org/u/frank.buckley)\
**Replies:** 5\
**Last updated:** [24 June 2026 18:57 UTC](https://community.down-syndrome.org/t/announcing-the-2026-research-forum/195 "2026-06-24T18:57:39Z")

</div>

Registration is now open for the 2026 Down Syndrome Research Forum. This year, the forum will again be hosted online over three days from 16 to 18 March. The Down Syndrome Research Forum is a regular international event…

---

## [Learning more about early babble (UK, babies aged 3-13 months)](https://community.down-syndrome.org/t/learning-more-about-early-babble-uk-babies-aged-3-13-months/206)

<div class="topic-metadata">

**Author:** [@frank.buckley](https://community.down-syndrome.org/u/frank.buckley)\
**Replies:** 0\
**Last updated:** [20 March 2026 15:56 UTC](https://community.down-syndrome.org/t/learning-more-about-early-babble-uk-babies-aged-3-13-months/206 "2026-03-20T15:56:34Z")

</div>

Researchers at the University of York are embarking on a fascinating and important study of to see if we can encourage more early babble in babies with Down syndrome and improve later speech and language development. …

---

## [Statistical methods and machine learning](https://community.down-syndrome.org/t/statistical-methods-and-machine-learning/202)

<div class="topic-metadata">

**Author:** [@frank.buckley](https://community.down-syndrome.org/u/frank.buckley)\
**Replies:** 0\
**Last updated:** [18 March 2026 16:06 UTC](https://community.down-syndrome.org/t/statistical-methods-and-machine-learning/202 "2026-03-18T16:06:15Z")

</div>

Following from my presentation at the forum earlier, I am happy to share the slides: https://go.dselink.net/0yvk Please feel free to post questions here or get in touch.

---

## [We are now accepting submissions for the 2026 forum](https://community.down-syndrome.org/t/we-are-now-accepting-submissions-for-the-2026-forum/168)

<div class="topic-metadata">

**Author:** [@frank.buckley](https://community.down-syndrome.org/u/frank.buckley)\
**Replies:** 0\
**Last updated:** [13 November 2025 11:42 UTC](https://community.down-syndrome.org/t/we-are-now-accepting-submissions-for-the-2026-forum/168 "2025-11-13T11:42:58Z")

</div>

We are now accepting submissions for the 2026 Down Syndrome Research Forum, which will be held online from 16 to 18 March 2026. We welcome a wide variety of contributions from experienced researchers, researchers new to…

---

## [Announcing the Down Syndrome Research Forum 2026](https://community.down-syndrome.org/t/announcing-the-down-syndrome-research-forum-2026/157)

<div class="topic-metadata">

**Author:** [@frank.buckley](https://community.down-syndrome.org/u/frank.buckley)\
**Replies:** 0\
**Last updated:** [16 July 2025 14:02 UTC](https://community.down-syndrome.org/t/announcing-the-down-syndrome-research-forum-2026/157 "2025-07-16T14:02:26Z")

</div>

We are delighted to confirm that the Down Syndrome Research Forum 2026 will be held on the 16th, 17th, and 18th March 2026. Announcements about submissions will be made later in the year.

---

## [What did you think of the 2025 Research Forum?](https://community.down-syndrome.org/t/what-did-you-think-of-the-2025-research-forum/139)

<div class="topic-metadata">

**Author:** [@frank.buckley](https://community.down-syndrome.org/u/frank.buckley)\
**Replies:** 0\
**Last updated:** [20 March 2025 14:43 UTC](https://community.down-syndrome.org/t/what-did-you-think-of-the-2025-research-forum/139 "2025-03-20T14:43:47Z")

</div>

Thank you to everyone who participated in the 2025 Down Syndrome Research Forum. We were delighted to welcome over 280 participants from 29 countries to this year’s research forum, including similar numbers of researche…

---

## [UK School Spring Census Jan 2025- data coming soon](https://community.down-syndrome.org/t/uk-school-spring-census-jan-2025-data-coming-soon/132)

<div class="topic-metadata">

**Author:** [@Leela\_Baksi](https://community.down-syndrome.org/u/Leela_Baksi)\
**Replies:** 5\
**Last updated:** [19 March 2025 13:06 UTC](https://community.down-syndrome.org/t/uk-school-spring-census-jan-2025-data-coming-soon/132 "2025-03-19T13:06:14Z")

</div>

Reporting from the January 2025 UK school census, which included the category ‘Down syndrome’ for pupils for the first time, is expected in June. We’ve called for this as the DS community for a long time! I’m intereste…

---

## [Report Published: A pilot study of the effectiveness of the Maths For Life programme for children with Down syndrome](https://community.down-syndrome.org/t/report-published-a-pilot-study-of-the-effectiveness-of-the-maths-for-life-programme-for-children-with-down-syndrome/135)

<div class="topic-metadata">

**Author:** [@Karen1](https://community.down-syndrome.org/u/Karen1)\
**Replies:** 0\
**Last updated:** [19 March 2025 10:50 UTC](https://community.down-syndrome.org/t/report-published-a-pilot-study-of-the-effectiveness-of-the-maths-for-life-programme-for-children-with-down-syndrome/135 "2025-03-19T10:50:30Z")

</div>

A pilot study of the effectiveness of the Maths For Life programme for children with Down syndrome Katie A. Gilligan-Lee 1,2\*, Karen McGuigan 3 and Holly Snellgrove 2 1 School of Psychology, University College Dublin, …

---

## [Day 3 - Down Syndrome Research Forum 2025](https://community.down-syndrome.org/t/day-3-down-syndrome-research-forum-2025/134)

<div class="topic-metadata">

**Author:** [@frank.buckley](https://community.down-syndrome.org/u/frank.buckley)\
**Replies:** 1\
**Last updated:** [19 March 2025 10:33 UTC](https://community.down-syndrome.org/t/day-3-down-syndrome-research-forum-2025/134 "2025-03-19T10:33:59Z")

</div>

Day 3 of the 2025 Down Syndrome Research Forum begins at 08:50 GMT today. Follow along here and @dseinternational.bsky.social For the full schedule:

---

## [Day 2 - Down Syndrome Research Forum 2025](https://community.down-syndrome.org/t/day-2-down-syndrome-research-forum-2025/130)

<div class="topic-metadata">

**Author:** [@frank.buckley](https://community.down-syndrome.org/u/frank.buckley)\
**Replies:** 1\
**Last updated:** [18 March 2025 08:55 UTC](https://community.down-syndrome.org/t/day-2-down-syndrome-research-forum-2025/130 "2025-03-18T08:55:39Z")

</div>

Day 2 of the 2025 Down Syndrome Research Forum begins at 09:20 GMT today. Follow along here and @dseinternational.bsky.social

---

## [Day 1 - Down Syndrome Research Forum 2025](https://community.down-syndrome.org/t/day-1-down-syndrome-research-forum-2025/120)

<div class="topic-metadata">

**Author:** [@frank.buckley](https://community.down-syndrome.org/u/frank.buckley)\
**Replies:** 3\
**Last updated:** [17 March 2025 17:24 UTC](https://community.down-syndrome.org/t/day-1-down-syndrome-research-forum-2025/120 "2025-03-17T17:24:57Z")

</div>

Day 1 of the Down Syndrome Research Forum 2025 gets underway soon. Follow along here and at @dseinternational.bsky.social on Bluesky

---

## [Last chance to register for the 2025 Research Forum](https://community.down-syndrome.org/t/last-chance-to-register-for-the-2025-research-forum/119)

<div class="topic-metadata">

**Author:** [@frank.buckley](https://community.down-syndrome.org/u/frank.buckley)\
**Replies:** 0\
**Last updated:** [14 March 2025 13:44 UTC](https://community.down-syndrome.org/t/last-chance-to-register-for-the-2025-research-forum/119 "2025-03-14T13:44:38Z")

</div>

The 2025 Down Syndrome Research Forum begins online on Monday. Register now to secure your place. Find out more: Registration is now open for the 2025 Research Forum

---

## [Registration is now open for the 2025 Research Forum](https://community.down-syndrome.org/t/registration-is-now-open-for-the-2025-research-forum/118)

<div class="topic-metadata">

**Author:** [@frank.buckley](https://community.down-syndrome.org/u/frank.buckley)\
**Replies:** 0\
**Last updated:** [4 March 2025 10:48 UTC](https://community.down-syndrome.org/t/registration-is-now-open-for-the-2025-research-forum/118 "2025-03-04T10:48:51Z")

</div>

The Down Syndrome Research Forum is a regular international event, hosted and sponsored by Down Syndrome Education International for over 30 years. The event attracts researchers, practitioners and family members from ar…

---

## [Down Syndrome Research Forum 2025](https://community.down-syndrome.org/t/down-syndrome-research-forum-2025/97)

<div class="topic-metadata">

**Author:** [@frank.buckley](https://community.down-syndrome.org/u/frank.buckley)\
**Replies:** 0\
**Last updated:** [31 October 2024 16:16 UTC](https://community.down-syndrome.org/t/down-syndrome-research-forum-2025/97 "2024-10-31T16:16:12Z")

</div>

The 2025 Down Syndrome Research Forum will be held on 17th, 18th, and 19th March, and is hosted by Down Syndrome Education International. The Down Syndrome Research Forum is an annual international event where researche…

---

## [Report launch: Shape Research, Change Lives: setting priorities in genetic syndrome research](https://community.down-syndrome.org/t/report-launch-shape-research-change-lives-setting-priorities-in-genetic-syndrome-research/80)

<div class="topic-metadata">

**Author:** [@E\_Farran](https://community.down-syndrome.org/u/E_Farran)\
**Replies:** 0\
**Last updated:** [18 June 2024 10:47 UTC](https://community.down-syndrome.org/t/report-launch-shape-research-change-lives-setting-priorities-in-genetic-syndrome-research/80 "2024-06-18T10:47:50Z")

</div>

Shape Research, Change Lives is a collaboration between University of Surrey, UCL and Oxford University and is funded by the Bailey Thomas Charitable Fund. To download our report: https://www.surrey.ac.uk/research-proje…

---

## [Updated estimates of births and population of people with Down syndrome in the USA](https://community.down-syndrome.org/t/updated-estimates-of-births-and-population-of-people-with-down-syndrome-in-the-usa/69)

<div class="topic-metadata">

**Author:** [@frank.buckley](https://community.down-syndrome.org/u/frank.buckley)\
**Replies:** 0\
**Last updated:** [2 May 2024 10:36 UTC](https://community.down-syndrome.org/t/updated-estimates-of-births-and-population-of-people-with-down-syndrome-in-the-usa/69 "2024-05-02T10:36:26Z")

</div>

To get started with posts in this category, I am pleased to share a recent update to work with colleagues Gert de Graaf and Brian Skotko that began 10 years ago. Since then, we have endeavoured to track trends in births…

---

## [Researchers: share your studies and advertise for participants](https://community.down-syndrome.org/t/researchers-share-your-studies-and-advertise-for-participants/63)

<div class="topic-metadata">

**Author:** [@frank.buckley](https://community.down-syndrome.org/u/frank.buckley)\
**Replies:** 0\
**Last updated:** [26 April 2024 12:28 UTC](https://community.down-syndrome.org/t/researchers-share-your-studies-and-advertise-for-participants/63 "2024-04-26T12:28:56Z")

</div>

We have added two categories where researchers can post information about their studies and invitations to participate in research. We welcome reports of findings (past and present) and discussion of study proposals. We…

---

## [From observations to advice - future research and practice?](https://community.down-syndrome.org/t/from-observations-to-advice-future-research-and-practice/49)

<div class="topic-metadata">

**Author:** [@frank.buckley](https://community.down-syndrome.org/u/frank.buckley)\
**Replies:** 0\
**Last updated:** [25 April 2024 11:47 UTC](https://community.down-syndrome.org/t/from-observations-to-advice-future-research-and-practice/49 "2024-04-25T11:47:38Z")

</div>

Thrilled to begin talking about our work on systems to collect everyday observations and then use these observations to offer more precise, more relevant, and more timely advice to families and professionals worldwide. T…

---

## [Announcing the 2024 Down Syndrome Research Forum](https://community.down-syndrome.org/t/announcing-the-2024-down-syndrome-research-forum/39)

<div class="topic-metadata">

**Author:** [@frank.buckley](https://community.down-syndrome.org/u/frank.buckley)\
**Replies:** 0\
**Last updated:** [2 April 2024 15:49 UTC](https://community.down-syndrome.org/t/announcing-the-2024-down-syndrome-research-forum/39 "2024-04-02T15:49:33Z")

</div>

The 2024 Down Syndrome Research Forum will be held online on 25 and 26 April. The programme is now available and registration is open. The Down Syndrome Research Forum is an annual event where researchers and practition…

---

## [About the Research category](https://community.down-syndrome.org/t/about-the-research-category/12)

<div class="topic-metadata">

**Author:** [@frank.buckley](https://community.down-syndrome.org/u/frank.buckley)\
**Replies:** 0\
**Last updated:** [15 February 2024 12:24 UTC](https://community.down-syndrome.org/t/about-the-research-category/12 "2024-02-15T12:24:53Z")

</div>
